Suggest Possible Treatment For Brooke-Spiegler Syndrome

Speaking of Brooke-Spiegler Syndrome I'm getting a procedure done very soon involving taking skin off my face down to the muscle and replacing with artificial skin and skin grafting from my own body. Have you ever heard of this type of permanent solutiong to Brooke-Spiegler? It's hard to speak to people because they haven't a clue what I'm talking about the condition is rare.