Good Day .. My Name Is Michelle Aged 45, Mother

Good day .. My name is Michelle aged 45, mother of 3 of which my son has a rare Genetic disorder MPSII Hunter syndrome duagmosed in 2010. While battling those struggles I myself have been very recently been diagnosed with Kimura's Disease. Last year in August I had surgery where the lymph node was drained out. Suddenly a few days ago I woke up with the same lymph gland swollen, hard & itchy, feels like a double chin & im also experiencing mild difficulty to swallow. I saw my oncologist yesterday & being so rare they have not had any other cases of this so they knowledge is limited & asked me to wait a few days as the team need to discuss options for me. Is there any information I can get to pass on to my oncologist so that they can relieve me from the discomfort. any information would be helpful as it's such a puzzle to me & I just need relief from these sudden Lumps appearing in my neck/throat.much appreciated.