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Hello, I'm A 44 Yr Old Female Who Was Dx
Hello,
I'm a 44 yr old female who was dx with severe Crohn's disease at 28 yrs of age. I've been I'll my entire life but was always told by Specialists in the small community of Prince Edward Island Canada, that I just had a "nervous stomach". In my teens, I was trying to avoid school, by age 18 I went, on my own to a Psychologist to help with panic attacks caused by my embarrassing & unbelieved incontinence. I've had been dx with endometriosis, mononucleosis (hospitalized twice for it), interstitial cystytis, PID & in '99 had to have an emergency cholecystectomy with my liver enzymes 3 x's the normal level. I'm 5'6 & was under 100 lbs at the time, & once removed, my gallbladder was merely inflammed. Finally, a G-I saw me & for the 1st time I had a scope. I asked to be awake so I could watch it while alert. It validated over 20 yrs of being called a hypochondriac. I had such severe Crohn's in the entire ascending colon, 3/4 of my transverse & as high up into the terminal ileum as the Dr. could access at the time. I had a hemicolectomy in April 2003, followed by a LLQ colostomy 6 mos later due to what was the most horrific leakage of pure bile acidic diarrhea. Now I am at a point where I've tried Questran, multiple diet changes, NG tube feedings, trials of Remicade & Humeria with terrible side effects. I don't know what to do anymore as I still have the same output of acidic bile, sometimes as much as 8-10,000 cc's in a 24 hour period. Ive taken narcotics but fear addiction, so I take a slow acting MS Contin 100 mg's tid, rectally, as pills flow through my system in minutes. I have no quality of life and really would like to have some sign of hope for my future. Is that even possible?
I'm a 44 yr old female who was dx with severe Crohn's disease at 28 yrs of age. I've been I'll my entire life but was always told by Specialists in the small community of Prince Edward Island Canada, that I just had a "nervous stomach". In my teens, I was trying to avoid school, by age 18 I went, on my own to a Psychologist to help with panic attacks caused by my embarrassing & unbelieved incontinence. I've had been dx with endometriosis, mononucleosis (hospitalized twice for it), interstitial cystytis, PID & in '99 had to have an emergency cholecystectomy with my liver enzymes 3 x's the normal level. I'm 5'6 & was under 100 lbs at the time, & once removed, my gallbladder was merely inflammed. Finally, a G-I saw me & for the 1st time I had a scope. I asked to be awake so I could watch it while alert. It validated over 20 yrs of being called a hypochondriac. I had such severe Crohn's in the entire ascending colon, 3/4 of my transverse & as high up into the terminal ileum as the Dr. could access at the time. I had a hemicolectomy in April 2003, followed by a LLQ colostomy 6 mos later due to what was the most horrific leakage of pure bile acidic diarrhea. Now I am at a point where I've tried Questran, multiple diet changes, NG tube feedings, trials of Remicade & Humeria with terrible side effects. I don't know what to do anymore as I still have the same output of acidic bile, sometimes as much as 8-10,000 cc's in a 24 hour period. Ive taken narcotics but fear addiction, so I take a slow acting MS Contin 100 mg's tid, rectally, as pills flow through my system in minutes. I have no quality of life and really would like to have some sign of hope for my future. Is that even possible?
