Hi, My Son Has Temporal Focal Seizures And Is Now

Hi, my son has temporal focal seizures and is now considered to have refractory epilepsy. I am inquiring about the use of cbd oils for his types of epilepsy. I am wanting info. on how to be a part of a clinical trial. Surgery is not an option yet for him because he has malignant hyperthermia. He has an MTOR gene mutation which is the cause of the epilepsy. It is vary rare in the sense of 4 people have been diagnosed with this specific mutation. Any advice would be greatly appreciated.