How To Treat Caudal Duplication Anomaly And Eds?

Hi, I´m from Sweden, I Have a mounth ago been diagnos. EDS, I have another diagnos too, Caudal Duplication anomaly. I have 2 uterus, 3 ureter, 4 pelvic, 3 kidney, 3 kidneyartar, mY dougther has 4 Kidneyarter...have you seen that before With EDS? (double organs) In Sweden the doctors dont know anyting about this, now they must look after other problems in my and my girls body too. I have been at Karolinska Klinisk Genetik, and are soon going to Uppsala and Akademiska Hospitaly for help. Thanks!