I BELIEVE I HAVE SIBM. MY EXPERIENCE OVER THE LST

I BELIEVE I HAVE sIBM. MY EXPERIENCE OVER THE LST 30+ YEARS IS A SEQUENCE WHERE I FIRST HAVE ITCHING ASSOCIATED WITH "PIMPLES" )VACUOLES), THEN MUSCLE SORENESS, THEN MUSCLE WEAKNESS AND FINALLY , IF IT GOES THAT FAR, MUSCLE ATROPHY. I CURRENTLY HAVE SIGNIFICANT DIFFICULTY IN SWALLOWING. AN ENT /ENDOSCOPY EXAM SHOWS I HAVE A SWELLING / IRRITATION OF THE UPPER ESOPHOGUS (SP?). BOTH MY NEUROLOGIST AND RHEUMATOLOGIST CLAIM I DO NOT HAVE sIBM SINCE I DO NOT EXHIBIT SIGNIFICANT MUSCLE WEAKNESS. THE "s" IN sIBM REPRESENTS SPORADIC AND THAT IS EXACTLY MY EXPERIENCE. AN MUSCLE OR JOINT CAN BE ITCHY OR SORE FOR A WEEK OR A MONTH, THEN REVERT TO NORMAL. AT THE MOMENT, MY HANDS, WRISTS AND FOREARMS ARE SORE. THE SKELETAL MUSCLES AROUND MY RIB CAGE ARE ALSO SORE. I HAVE A PROBLEM OF BREATHLESSNESS WITH MINOR EXERTION, ALTHOUGH WHEN I RUN AND PAY CLOSE ATTENTION TO PROPER BREATHING, I DO NOT HAVE A PROBLEM. MY SITUATION IS SLOWLY GETTING WORSE AND WOULD LIKE TO DISCOVER HOW TO ACHIEVE SOME TYPE OF THERAPY. CAN YOU HELP ?