I Have CMT Type 1A And Osteo Genises Imperfecta Scoliosis

I have CMT type 1A and osteo genises imperfecta scoliosis hip dysplasia osteoporosis osteo arthritis sciatica all toes amputation on left foot due to osteomyelitis painful calluses and for some reason pain in tail bone I feel like my pain management Dr doesn't understand how much pain I'm in I take 7.5mg percocet 1 every 8 hours my Dr informed me if the medication doesn't help he is taking me completely off for awhile and then when I start to take it again it will help I have never been afraid to talk to a Dr until now the pain management Dr I want to go to is the head one of the pain management including my Dr they work out of different offices I don't know how to start seeing the head one my son sees her he has the Cmt