Hi,I am Dr. Shanthi.E (General & Family Physician). I will be looking into your question and guiding you through the process. Please write your question below.
I have a 24 year old son who has lymphoma and reoccurring Rhabdomylosis. He is currently on Rotuxin infusion every eight weeks. He suffered his first Rhabdo crisis in 2012 and was in full renal failure. He recovered after about 2 weeks of IV hydration in the hospital; no dialysis. However, his liver enzymes are elevated, kidney function normal and LDH high. Since 2012 he has had reoccurring Rhabdo and been treated at home with intense hydration. Recently he has not been able to do even simple tasks such as grocery shopping without his muscles trembling and his urine gets dark. I cannot find any doctor who has knowledge in these areas and I need a team to work together to diagnose all his symptoms.