I Have Knots On The Outside Of My Hips, And

I have knots on the outside of my hips, and down almost to my knees. They are very painful. Some days big, other days so small you can almost not feel them.
I have had two back fusions, and I have a SCS. These started about two months after the implant. But my Dr. who did the implant says he has never had anything like this to happen before. Nor has he ever heard of this happening to anyone that has had a SCS implanted.
I been to my family doctor, another surgeon and my Rheumatologist. No answers and they are not sure where we should go from here.
Where do you think I should go from here?
Thank you Margaret B.