I Need A Doctor Who Specializes In Scleroderma Only. My

I need a doctor who specializes in scleroderma only. my mother is diagnosed with this disease and it is effecting her internal organs. she is not eating . she always feels puky. I am 50 years old, youngest of 4 children. she is only 76 years old and my father is deaf. she has always been his ears since they met 55 years ago. I am not ready to let her pass. we live in Gladstone Michigan and there are no doctors who specialize in scleroderma in our area. I am desperate for a doctor to help her please. I believe there is not much time for her. I am sick inside. I want to help her. but don't know what to do. sincerely lynn in Gladstone.