I Need To Find A Doctor Who Can Help Me

I need to find a doctor who can help me with a thornwaldt cyst the doctor I went to said she had never heard of this type of cyst and had to look up info on it I had a ct scan and it show that the cyst was on the spine and brain stem. I had a mri showed it was not that it was not growing into the bone,The Doctor said she didn't know how to treat it .But will watch it .I live in Fl.The doctor was a Neurologist surgeon.