I'm Being Refered To Clevland Clinic For What Appears To

I'm being refered to clevland Clinic for what appears to be occult vasculitis... I've had 4 major episodes in 35 years but never a diagnosis .... I'm concerned this time that things are moving too slowly... I believe I need to get diagnosed so I can receive the appropriate treatment to conceivably save me....how do I get through this... My DR.. Has no sense of urgency
My e- mail is YYYY@YYYY