My 24 Year Old Daughter Has Suffered Off And On

My 24 year old daughter has suffered off and on for 8 yrs with episodes of moderate to severe hip stiffness, overall body pain, pain in chest when taking a deep breath. Symptoms last anywhere from 2 days to 2 weeks. We have had to go the ED for pain management on two occasions. Consistent general feeling of fatigue and now she is having stomach distress - pain that keeps her awake and burning. She has been diagnosed under the spondyloarthritis umbrella but she is getting worse and we feel strongly that something is being missed.