My Daughter Is 26 Years Old. For 10 Years, She

My daughter is 26 years old. For 10 years, she has had swelling and pain in her knee. She had 2 synovectomies. She also has pain in her jaw. I took her to Mayo clinic, where she was diagnosed with Childhood Rheumatoid Arthritis. Took Humira for 2 years. Now she has been diagnosed with Lupus. but recently had blood work done which all came back normal. She is exhausted, in pain, and miserable. The rheumatologist told her she is just either having a mild flare up or she has the flu, and to come back if she gets worse. She is on Plaquinol, and is expected to soon have surgery to get rid of a gel filled cyst that has travelled into her calf. We just don't know where to turn anymore to find out what she has and how to give her some kind of quality of life. Help!!!