My husband has been feeling under the weather for almost a year now and I am very concerned because he isn't very good about follow up with doctors. However, I have been doing a lot of jumping up and down so he has had recent blood work, EEG, a brain MRI and CAT scan, which all seem fairly normal with the exception of one "very small" cerebral hemorrhage. He has tremors (arms, hands and more rarely, legs and head), an occasional dropping right eye, weakness, confusion, fatigue, nausea. He has just started stuttering , since, what the doctors say was, a seizure seven weeks ago. He has recently been having trouble swallowing as well. Occasionally his jaw gets tired when he eats foods like salad.
General/health history: He is 49 years old smoker (since he was 14 years old). He is in recovery (7 yrs) from opiate abuse after becoming addicted to pain killers for 4 yrs, following a serious car accident and subsequent back surgery in 2004. He has been on a small dose of Suboxone since 2008 because he has chronic back pain still from the accident and nerve damage. They have suggested he needs back surgery again but he doesn't want to go through that again and be forced to take heavy opiates again in order to recover. He never sits around and is always working in spite of his chronic pain because he says when he is idle, the pain is worse. He has Hep C and is waiting for approval from insurance to start Harvoni treatment. His viral load is high but he is only at stage 1-2 sclerosis (according to a fibroscan done in April of this year). He has strange lesions on his arms and legs and a few on his torso, that he has been told are from liver damage. In 2009 he was told that he has few small lesions on his lungs (that have not grown at all since, according to cat scan in May of this year) which indicate early signs of emphysema.
Family History: Mother died of sepsis after exploratory abdominal surgery at 51 years old. His father died of Lung cancer (after it metastasized to both his stomach and brain) at 59 years old. His sister (only sibling) died of lung cancer at 47 years old.
I think he doesn't like to follow up with doctors because he is scared of what they might tell him. Any direction would be helpful.
posted on
Fri, 12 Jun 2015