Respected Sir. My Left Hand Upper Arm Suffering From Fibrous

Respected Sir. My left hand upper arm suffering from fibrous dysplasia disease ....start from 1997 but at time is doing biopsy in MS Ramayya hospital banglore...after next 6 months bone is increase at the same place..and hand is not movement and fold ..sometimes pain and like think burning ,,like think pushing for pins..

We are check up maximum hospitals (Appolo , vellor CMC ,Hyd) but every body told better option is removed the hand otherwise this caused for fledge by total body...
But up to still now I having save from fledged by other body areas...

So please kindly give me any option for cure my disease as well as...

Thanking you..

Regards
Jamaal
Andrapradesh