Suggest Treatment For Darier S Disease

I have a rare skin disorder called dariers disease. Usually it has been kept under control with sorietain medicine and clobatozol cream as well as a cream that takes dry dead skin off the feet. Last Wednesday I awoke with my hands swollen twice the size and blood blisters on them as well as my feet very swollen and large water blisters. I am in so much pain I cannot walk and I missed three days of work last week. My mother had this and my sister has it as well. I was told there were some really good dermotologists at Geisinger Wyomimg Valley. I feel this is an emergency and I need help as soon as possible. Can you help me?