I have been dx'd with a pheochromocytoma, approx. four years ago. After many MRIs, MIBGs, PET scans, Octreocide (sp) scan, we have yet to locate the tumor. I am exhausted, am on Cardura, Toprolol and Normodyne but continue to have very high blood pressures, especially in the morning.I also I see an endocrinologist but I think I need additional help. Do you have any suggestions? I am looking for a provider who is experienced in this type of tumor. I am 48, female, white, non-smoker, last BMI was 24.5. thank you
posted on
Mon, 26 Jan 2015