What Is The Treatment For Erythrokeratodermia?

Hi my name is Mark & I am 36 yrs old. I live in Eastern Illiinois. I have a severe case of palmer/planter Erythrokeratodermia since birth & so do several of my family members. Like most handicaped people my family wants to be treated normal and act like it don't exsist, although my condition is becoming so unbareable that I can not longer ignore it. I am looking for help in getting properly diagnosed.