Why Are Gp Drs Taking Those Who Have Already Been

why are gp drs taking those who have already been through pain drs , therapies, other meds etc leaving us n excrutiating pain, even though congresses "guideline" even states we should not be left in pain? my last dr retired partially only working with the elderly and end of life because he said he could not consientiously take care of us because he could not help us with these rules - they are supposed to be guidelines not law.... heres conersation with painfoundation which seems to be not really helping us eiher...

Paul Gileno < YYYY@YYYY > Sep 21 at 5:57 AM
To     
Tracie Thresher
Message body
Thank you for sharing your story, It is very powerful. If you could share with us your address we would love to send you a patient package

On Sat, Sep 10, 2016 at 8:19 PM, Tracie Thresher < YYYY@YYYY > wrote:

i'm a sever chronic pain sufferer. i went yrs trying to ignore it eating ibuprfen and tyl to a point i got reflux and ulcers, the dr tried muscle relaxants and antidepressants but had really bad side effects, got so bad i couldn't get out of bed, take care of my kids or even work, not even small housework... i finally was given propox and vicodin, my first increase in pain meds was after quite a few yrs ( mainly changed because given less tyl version ) and then not until my surgery with 3 moth hosp stay where i was put on fentynyl and oxycodone . so only twice in well over25 yrs i had increase. i have fibromyalgia all over without pain meds i can not get out of bed. i can not be touched lightly as it feels as if i have been hit by a bat! i also have a tube feeding,the surgery i had a 3 month hosp stay due to complications . i have gastroporesis which causes more pain in the form of someone twisting my intestines and crushing them - unlike the fibro which is continuous im blessed its down to a few times a day. i was told by my dr i have to be off all pain meds .im going to have to go back to inability to get out of bed, unable to touch my grandchildren because it will be to painful to even feel thier touch... i don't get high on these meds . all i've read on the guidelines - drs should NOT be taking from us that really need it. from my understanding anyhow. so why are we being lumped in with the addicts. i've signed my contracts - followed to the letter . i've done all the right things, pain specialist, gabapentin and other meds they made me feel drunk, i couldn't work or function, literally bouncing into walls! pain increased so bad my body would distort in pain, i could not lay down or sit up comfortably, my arms would curl around the air and my body, not to mention other severe side effects - i've done chiropracters, massages when i can get it - usually once a week when caregiver comes, counselars, specialized counseling for breathing techniques and relaxation techniques and emotional counseling. i use tens, ice / heat , lidocaine oint which ins refuses to buy enough to last the month, PT and exercises. cortisone shots when it gets bad for longer period of time that i feel i need a boost but wont ask for more meds. all the things i've learned and use, i still do on my own at home. ( ie PT ,relaxation, tens, heat, ice, counseling, etc. ) . i am at a loss. i don't want to go through that again. i shouldn't have to go through it all over ( all the pain, drs. testings, trying different things when i tried em all already), esp if they wont give the pain meds back anyhow. i am not against trying something new if they really have a new something ( which they don't from my understanding of it) and i'm willing to try a decrease but if it doesn't work i should be able to get it back if we get to low and it interferes with my functionality and quality of my life. thoughts i would never consider and would not do keep entering my head as some have said theyd do , like maybe try pot? etc.. but i could not do that, i've got a teen who is into iit i say dont do it and turn him in.. i would be a hypocrite esp for him if did. i am ure the pain will at least make my aortic insufficiency worse, the pain/stress, perhaps it will give me another heart attack, i don't know what it will do , i am sure my other illnesses will get worse with the stress of it, because the non pharmacological things i do help some to keep the edge off the edge the pain the meds bring me down to , but it will never help the pain on its own merits....id like a real answer not the bull letters sent that yu dont want us to suffer, we will get good care. because we arent getting cared for - we are getting knifed and left to suffer. a letter telling me how i can get my pain control again, get my pain killers back until you actually get something that will help me....