Question: Could this be Idiopathic intracranial hypertension?

It all began three years ago after I had an episode of branch retinal vein occlusion in my right eye. The cause was never found, but that was just the beginning of strange issues I've had ever since.

For the first year after the incident, I had a constant feeling of pressure in my head. When I sneezed or bend over, I got a strong headache in the back of my skull (that went away slowly after I got up again). Loud tinnitus in my left ear started. The back of my eyes hurt all the time, my ears would get locked like I was in an airplane, constant dizziness sensation. My rhinorrhea (clear fluid dripping out of my nose) also seemed to be getting worse (I've had this issue for years, I take Nasonex for it). My vision was messed up, afterimages, static in vision (visual snow), trouble looking at patterns (some carpets for example).

The second year, things get a bit better. The head pressure sensation went pretty much away. The dizziness lessened. The vision problems were still there, though I didn't pay that much attention to them anymore.

The third year (this year), some of the first year symptoms got back again. The dizziness got worse again. Vision issues are slightly worse (the afterimages especially). New issue: Sudden neck stiffness with a headache (again, seems to originate from the back of my skull). Comes and goes (hasn't happened very often fortunately). One thing that I've been noticing more and more now is that I have a pulsatile tinnitus in my left ear. Gets real loud sometimes and then calms down again.

During the 3 years, numerous things have been ruled out. IIH is one thing that I haven't been tested for though. My CSF opening pressure hasn't been measured. Brain MRI was taken 3 years ago, right after the retinal vein occlusion.

I'm mostly worried about my vision. (Usually) slow vision loss in IIH seems to be the biggest thing to worry if one has that. I wonder if my retinal vein occlusion episode could have something to do with this as well. Finally, I'm pretty sure it's just vasomotor rhinitis, but I've also read about CSF Rhinorrhea. The fluid that comes out of my nose constantly is clear. I wonder I wonder..

Do you think I should get my opening pressure tested? Any other ideas? Thanks!

Thank you for your advice!

Vasculitis was one main thing doctors suspected when the retinal vein occlusion happened. That was ruled out after several tests & studies (this was in 2012). Coagulation profile was also taken at that time (no problem there).

I'll make an appointment with my local neurologist and ask for the CSF tests you mentioned. Looks like it's worth checking to be on the safe side.

Thanks again and have a great day!