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Our Oldest Son Is 14, Autistic, And Going Through Puberty He Has Told Me "penis Hurts." I Have No Experience At All With How This Would Feel Or How I Can Help Him. He Just Doesn't Understand And I Feel Helpless.

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Posted on Fri, 17 Aug 2018
Twitter Fri, 17 Aug 2018 Answered on
Twitter Mon, 6 Feb 2023 Last reviewed on
Question : Our oldest son is 14, autistic, and going through puberty. I cannot say he is "non verbal" because he uses words but he doesn't use sentences much or conversations at all. He has excellent teachers and therapists and is progressing with communicating his needs. However, when he's sick, he really can't tell me what hurts and it is heartbreaking to me because I can't help him. He sometimes says, "tummy hurts," but if I ask him if anything else hurts--like his tooth, ear, toe, etc.--he looks confused and agitated as if he just wants me to stop asking. Here's the thing: with puberty in full swing, he is getting several erections throughout the day and when it happens, he lies flat down on the floor, on his stomach. I ask him if he's okay and he always says "yes!" because it's an automatic response. However, in the last 2 weeks or so, he has told me "penis hurts." Of course, we have a psychiatrist and therapists whom he sees, so I'm sure I can get help or suggestions with how to help him with this for it is something that is really impossible for him to understand or maybe it's just I don't know at all how to approach it. My question for you is: is there any pain involved with his erections? He looks fearful and uncomfortable when it happens, and he does look pained. Since I'm his mother, I have no experience at all with how this would feel or how I can help him. He just doesn't understand and I feel helpless. Thanks so much for any suggestions or thoughts you could pass along!
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Answered by Dr. Diptanshu Das (6 hours later)
Brief Answer:
Such children have difficulty in adjusting to new changes

Detailed Answer:
Thanks for using the Ask a Doctor service.

I have gone carefully through your query. Let me mention that erections are not painful per se but if they last long, they can be painful. Since he is not oriented with the sensation and feeling, it is expected that he would feel uncomfortable. Moreover, children of autism spectrum prefer things not to change. They have difficulty in adjusting to change. This is a change and needless to say, he would feel pained by it irrespective of whether it is causing him physical pain. The only way out is to talk him out of it and it would not be easy. Nevertheless, a psychological counsellor needs to deal with it and it needs to be done efficiently. Rest assured that this will pass and he will grow habituated. Its just a matter of time and orientation.

Feel free to write back.

Regards
Note: For further queries related to your child health, Talk to a Pediatrician. Click here to Book a Consultation.

Above answer was peer-reviewed by : Dr. Vaishalee Punj
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Answered by
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Dr. Diptanshu Das

Pediatrician

Practicing since :2005

Answered : 3878 Questions

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Our Oldest Son Is 14, Autistic, And Going Through Puberty He Has Told Me "penis Hurts." I Have No Experience At All With How This Would Feel Or How I Can Help Him. He Just Doesn't Understand And I Feel Helpless.

Brief Answer: Such children have difficulty in adjusting to new changes Detailed Answer: Thanks for using the Ask a Doctor service. I have gone carefully through your query. Let me mention that erections are not painful per se but if they last long, they can be painful. Since he is not oriented with the sensation and feeling, it is expected that he would feel uncomfortable. Moreover, children of autism spectrum prefer things not to change. They have difficulty in adjusting to change. This is a change and needless to say, he would feel pained by it irrespective of whether it is causing him physical pain. The only way out is to talk him out of it and it would not be easy. Nevertheless, a psychological counsellor needs to deal with it and it needs to be done efficiently. Rest assured that this will pass and he will grow habituated. Its just a matter of time and orientation. Feel free to write back. Regards