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Suggest Treatment For Anxiety When Diagnosed With Idiopathic Dilated Cardiomyopathy

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Posted on Wed, 26 Aug 2015
Question: Hello-
I have talked to a few cardiologists here and have gotten much helpful advice and information and reassurance. However, soon after talking to someone, I start to need to ask the same questions again because doubt sets in once again.

I was diagnosed with idiopathic dilated cardiomyopathy in October 2014 and told my life would be shortened and that I was likely to die suddenly of cardiac arrest. Because I was having 65,000 PVCs a day, I sought the opinion of an EP and EP thought, as I did, that PVCs caused cardiomyopathy. I had an ablation in December 2014 and heart size and function were back to normal within 4 weeks.

I was hospitalized when diagnosed, and the doctor there grabbed the water out of my hand and said I would not be able to process the water. Since then, I've been preoccupied with fluid input and output. Sometimes it seems I'm drinking much more than I urinate and I get terrified I'm going into CHF again. I had almost no symptoms even with EF of 25-30, so I feel without tests from doctors I will never know if I'm getting sick again.

I have had serial echoes, and they usually show EF of about 60. Last month one showed EF 55-60 and my most recent a week ago showed EF 65-70. I don't know if EF is fluctuating or if that's normal variation. I just know I'm terrified of EF going low again. PVCs are contolled and I'm being slowly tapered off of carvedilol.

I am trying to believe I'm recovered and to get back to my normal life but I have so much anxiety, I just seem to worry about my heart all day long.

Do I need to worry about fluid so much? Is my EF stable? What is prognosis for PVC-induced cardiomyopathy? I'm so scared of a recurrence, with or without return of arrhythmia.

Thank you so much. Oh and are these conversations viewable to the public? Can I request privacy protection?
doctor
Answered by Dr. Ilir Sharka (56 minutes later)
Brief Answer:
You should try to manage better your anxiety

Detailed Answer:
Hello dear XXXX!

Let’s start from your EF fraction: all your recently performed cardiac ultrasounds have unequivocally confirmed that your cardiac performance is quite normal. As (ejection fraction) EF is a loading dependent parameter it is quite normal that during different ECHOs may found slight variations.

So you don’t have to worry about your EF value deviations as they are not an indicator of any upcoming recurrent cardiomyopathy process.

As a cardiac patient, having recovered successfully from such a specific PVC induced cardiomyopathy you are advised to periodically check your cardiac performance by repeated cardiac ultrasounds (in a yearly fashion).

Regarding your fluid intake/output I would like to add that taking more fluids you will increase intravascular circulating volume and hence the preload ventricular conditions, hence triggering normal physiological mechanisms (according to the heart’s functioning laws), leading consequently to more vigorous cardiac pumping process, more systemic blood circulating through several organs, including the kidneys, so more urine (fluid output).

So as I explained to you XXXXXXX there is no risk for fluid accumulation within your body.

What your doctor said to you, when you were hospitalized is completely true.

BUT, remember that you were suffering at the time from a low EF cardiomyopathy and the normal cardiac functioning laws are not eligible in such pathological settings.

An excessive fluid intake during that period would overload your weakened heart, decreasing further its performance.

But it is not the case actually. You are completely recovered and there are not any chances for such a cardiomyopathy to recur again.

As you see, the only persistent problem is your anxiety.

I would advise trying to manage your anxiety better in the future and unpleasant thoughts visiting your mind.

According to your last question (privacy protection), you can as direct questions to your preferred doctors, avoiding such way a much larger public viewers.

Just search for this option (direct query) on HCM system, or ask to Customer Care Service for assistance.

Hope to have been helpful!

I am at your complete disposal whenever you have further uncertainties.

Best wishes,
Dr. Iliri

Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
doctor
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Follow up: Dr. Ilir Sharka (20 hours later)
Thank you so much wonderful Dr. Iliri! I am embrarassed to need so much reassurance but I was so badly shaken and frightened by my experience that I am too scared to accept that I am healthy and normal again. What if I get sick again? I could not endure it so I choose to keep living as if I'm still sick. I dont mean I choose it- I just can't seem to help it. All day I remember hearing that I will not see my young son grow up and I am so sad and devastated still, even though cardiomyopathy resolved.

So with normal heart, kidneys, and liver, my body can handle fluid balance and I can just forget about it? Even when it seems sometimes that intake exceeds output even though I haven't been sweating excessively?

It's been 10 days since my echo showed EF of 68-70, just three weeks after echo showed 55-60. Is it not possible that in similar time frame, EF can go lower by a similar amount, to 45-50?

I want so badly to feel normal. If I could forget about water retention I think I would feel almost ok. All of the doctor's warnings still keep going through my head, though, and I keep focusing on the water.

Thank you for your immense patience and knowledge. I hope with time, my anxiety and fear will fade. I want to truly believe that I am cured and live normally and happily. You are helping me very much. Do you truly believe I am no more at risk than the general population for heart problems now?

Thank you.
doctor
Answered by Dr. Ilir Sharka (5 hours later)
Brief Answer:
You are considered a normal healthy individual.

Detailed Answer:

Dear XXXX!

I would like to assure you that water is as harmless as it could be to every other normal individual.

And I strongly believe you are going to enjoy your life and see your son grow up.

I recommend that every time your anxiety visits you, and those unpleasant thoughts perturb your mind, to always remember what I have written above.

If you need further assurance, you may ask direct question every time you wants.

I am at your disposal if you need help!

Best wishes,

Dr. Iliri

Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
doctor
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Follow up: Dr. Ilir Sharka (21 hours later)
Thank you Dr Iliri! I think I have to throw away my scale and let myself eat like a normal person again. As I was prescribed a low sodium diet when I was sick, I have continued to eat that way and no longer enjoy eating and never eat food that I love.

Do I need to continue to weigh myself or does that just feed into my obsession with water? I want to be normal again but my brain is so scared.

So my fears that I am retaining water and that my EF has fallen just 10 days after an echo are irrational? I know I should just feel lucky that I was cured of a disease that isnt often curable but my mind is not letting me believe that I have fully recovered.

Thank you so much for all your help. I will keep re-reading all of your reassuring advice. I hope soon it will just settle into my brain.
doctor
Answered by Dr. Ilir Sharka (1 hour later)
Brief Answer:
You are welcome!

Detailed Answer:
Dear XXXX!

I encourage you to follow a normal healthy diet (with a normal sodium content).

There a several of them, one of more convenient and natural is Mediterranean diet.

You should decrease your alertness regarding your body weight control, as well as fluid balance. Let your body to adjust by itself the optimal equilibrium.

There are no comparable regulators such wonderful as normal human bodies.

Your fears regarding water overload and EF fluctuation seems to be not real and evidence based. So they are irrational.

Hope that our discussion will help in improving your viewpoint towards optimistic and realistic thoughts (when it comes to health issues).

If you have further uncertainties you can ask me directly (no embarrassment!)

Best regards,

Dr. Iliri
Note: For further queries related to coronary artery disease and prevention, click here.

Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
doctor
Answered by
Dr.
Dr. Ilir Sharka

Cardiologist

Practicing since :2001

Answered : 9541 Questions

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Suggest Treatment For Anxiety When Diagnosed With Idiopathic Dilated Cardiomyopathy

Brief Answer: You should try to manage better your anxiety Detailed Answer: Hello dear XXXX! Let’s start from your EF fraction: all your recently performed cardiac ultrasounds have unequivocally confirmed that your cardiac performance is quite normal. As (ejection fraction) EF is a loading dependent parameter it is quite normal that during different ECHOs may found slight variations. So you don’t have to worry about your EF value deviations as they are not an indicator of any upcoming recurrent cardiomyopathy process. As a cardiac patient, having recovered successfully from such a specific PVC induced cardiomyopathy you are advised to periodically check your cardiac performance by repeated cardiac ultrasounds (in a yearly fashion). Regarding your fluid intake/output I would like to add that taking more fluids you will increase intravascular circulating volume and hence the preload ventricular conditions, hence triggering normal physiological mechanisms (according to the heart’s functioning laws), leading consequently to more vigorous cardiac pumping process, more systemic blood circulating through several organs, including the kidneys, so more urine (fluid output). So as I explained to you XXXXXXX there is no risk for fluid accumulation within your body. What your doctor said to you, when you were hospitalized is completely true. BUT, remember that you were suffering at the time from a low EF cardiomyopathy and the normal cardiac functioning laws are not eligible in such pathological settings. An excessive fluid intake during that period would overload your weakened heart, decreasing further its performance. But it is not the case actually. You are completely recovered and there are not any chances for such a cardiomyopathy to recur again. As you see, the only persistent problem is your anxiety. I would advise trying to manage your anxiety better in the future and unpleasant thoughts visiting your mind. According to your last question (privacy protection), you can as direct questions to your preferred doctors, avoiding such way a much larger public viewers. Just search for this option (direct query) on HCM system, or ask to Customer Care Service for assistance. Hope to have been helpful! I am at your complete disposal whenever you have further uncertainties. Best wishes, Dr. Iliri