its a rare disease.i have not seen any one yet with it. B;your treatment is right.cyclophosphamide is the main stay of treatment for it. C;the disease course is chronic and progressive,so recovery is difficult. D;Treatment with high-dose chemotherapy followed by autologous peripheral blood stem cell transplantation may result in clinical improvements of polyneuropathy,it will ease your numbness. E;The current mainstays of treatment for patients with diffuse disease include combinations of corticosteroids, low-dose alkylators, and peripheral blood stem cell transplantation following high-dose chemotherapy. Some caution should be used in selecting the chemotherapeutic regimen to avoid worsening of the polyneuropathy. best wishes for you dear