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Can Kidney Transplant Treat D-HUS (Hemolytic Uremic Syndrome) In A Child?
my son n. bhanu shashank ....a 7 year old boy .. suffering from D-HUS (hemolytic uremic syndrome,) he was 1st diagnosed in feb-2010 (at 5 n hlf years) .. he has had olgo - anuric CKD since the diagnosis and required maintenance dialysis for survival .he was on PD for 1 month before he developed atypical mycobacterial peritonitls with subsequent failure of peritoneal dialysis ..he was shifted to hemodialysis in april 2010 and is on HD for 3 times a week for the past 17 months .. we have had to change several HD catheters in the past 1 year due to line infection thrombosis. he is currently having left internal jugular vein catheter for the past 3 months . he also had severe hypertension requiring 6BP agents and hence under went bilateral nephrectomies in june 2011. his BP's are better since then on 3 agents + aggressive dialysis .i would like to have kidney transplantation for bhanu shashank ..
Thu, 27 Aug 2015
Hello Bhanu and welcome to HCM.
As an Urologist, i can fully understand your concern.
After reading your question, let me assure you, that for the time being, follow the maintainence, tri-weekly, HD.
Forget about the transplant. It should be considered only in ideal conditions.
I'm sure, even the Nephrologist would've told you the same.
HUS is a major complication, which needs to be treated aggressively.
If you send me a copy of the reports in my name, i can give you an expert opinon. Dr.Matthew Mangat.
As an Urologist, i can fully understand your concern.
After reading your question, let me assure you, that for the time being, follow the maintainence, tri-weekly, HD.
Forget about the transplant. It should be considered only in ideal conditions.
I'm sure, even the Nephrologist would've told you the same.
HUS is a major complication, which needs to be treated aggressively.
If you send me a copy of the reports in my name, i can give you an expert opinon. Dr.Matthew Mangat.
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