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Have TCP Purpura, Multi Giant Cell Hemangiomas In Spine And Neck, Liver, Lungs And Head. On Fentanyl. Suggestions?
Hi My name is Jane I have TCP Purpura, Multi Giant Cell Hemangiomas in all the verts in spine and neck, Liver (4 all 16 cm) in my legs and R & L Axillias, Pancreas, Around my Gall Bladder, Stomach, reproductive organs and now in my right lung, and head. Many are Symptomatic and I am on Fentynyl and other drugs to try and combat nerve pain and other symptoms......
Tue, 21 May 2013
Hi and welcome to HCM. Thank you for your query.
I am sorry about your diease, but you should be encauraged to treate it by all possible methods. Haemangiomas which are symptomatic, larger that 10 cm and which are risky to bleed should be surgicaly removed especailly those in liver and lungs. Also splenectomy should be peformed if possible for improvement of trombocytes levels. Wish you good health.
I am sorry about your diease, but you should be encauraged to treate it by all possible methods. Haemangiomas which are symptomatic, larger that 10 cm and which are risky to bleed should be surgicaly removed especailly those in liver and lungs. Also splenectomy should be peformed if possible for improvement of trombocytes levels. Wish you good health.
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