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I Need Informations On Progressive Cone, Dystrophy And Stem Cells Treatment, Please Suggest
hello, my son is 15y and has been diagnosed in 2004 with progressive cone dystrophy high myopia and congenital nystagmus , is also has moderate learning difficulties ,his loosing more of his vision ,we are devastated and scared ,please help us with any informations or treatment ,if stem cells implant is an option for my son? we are willing to travel any were in the world to seek treatment and save him from blindness .thank you in advance .
posted on
Sun, 6 Feb 2011
Medically reviewed by
Ask A Doctor - 24x7 Medical Review Team
Wed, 9 Feb 2011
Answered on
Wed, 9 Feb 2011
Last reviewed on
dear zahra,
Progressive cone dystrophy as the name suggests is a progressive disease, however rate of progression varies from patient to patient. The good part is that these patients rarerly progress to total blindness and will retain a good part of their peripheral vision,which will sustain them in their daily activities especially in famililar surroundings.Fine visual activities like reading may not be an option in the long run.It may be useful to approach low vision clinics in your area to maximise the available vision and aid in his overall development appropriate for his age. Stem cell therapy is at best only an experimental therapy in the current stage of stem cell research. Dr Merine Paul.
Progressive cone dystrophy as the name suggests is a progressive disease, however rate of progression varies from patient to patient. The good part is that these patients rarerly progress to total blindness and will retain a good part of their peripheral vision,which will sustain them in their daily activities especially in famililar surroundings.Fine visual activities like reading may not be an option in the long run.It may be useful to approach low vision clinics in your area to maximise the available vision and aid in his overall development appropriate for his age. Stem cell therapy is at best only an experimental therapy in the current stage of stem cell research. Dr Merine Paul.
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