After I went into adrenal failure I started having seizures- passing out, or grey-outs, full body weakness, with pins and needles when I come to...and then what feels like a migraine headache as an after effect. First I was treated with ever migraine med because the triggers seemed to be light (I am like a vampire with light) and high pitched sound. None of the migraine meds helped- in fact, as soon as I took any of them I would get more nauseous and have more pain. I was on anti-seizure meds like Neurontin- It gave me a whole lot of brawny edema . I have fibromyalgia complex regional pain syndrome with neuropathy, psoriatic arthritis, and biliary gastritis. My primary care Doc says it might be silent seizures. I had an eye appointment 3 days ago and the glaucoma test with the bright colored lights- spawned a siezure- next day I felt like I had a hangover. Yesterday I had 2- one brought on by reflecting light and another from a high pitched sound...so that is 3 'seizures" in 3 days- I have no idea what to do for this. Most neurologists say it is complicated and I am on Medicare/ Medicaid in NJ and I am 37. 35 doctors tell me I am too complicated and I am originally from PA so I am still going to the same primary care Doc for over 25 years. Epilepsy runs on my father's side of the family but those were Grand Mal. Help!!!
posted on
Fri, 14 Mar 2014