Suggest Therapy For An Acute Case Of Lupus?

I am a 41 year old white male and have an acute case of (Sle)Lupus and spent 4 months in intensive care and almost lost my life. I was Spain when I felt odd & sore so I went home to Canada. 24 hours later I was in a coma. Not induced. I was in a coma for 52 days,after swelling went down to 79 pounds and my funereal last rites were pronounced to me twice. It was a life-changing experience and I have spent years in recovery. I do flame up a lot and and am in a lot of pain. The doctors are truly amazed at my excellent recovery. I am on 200mg of oxyneo a day and surprisingly manage it well but I hate the withdrawls. I was initially prescribed 400 a day and have weened down to 200mg a day. Still a lot. I have to take them precisely at the proper times but sometimes get withdrawl really bad. I really,really would like to taper more. What should I do? I feel stuck at this dosage. I ve done remarkably well but what to be the best i can be. Please help.