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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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Suggest Treatment For Ehlers-Danlos Hypermobility Type

XXXXX I have been diagnosed with Ehlers-Danlos hypermobility type (at age 64). My major features fall within this class. I also have some vascular (blow blood vessels in palms of hands and soles of feet, no philtrim, thin upper lip, thin velvety skin, high palate and very small blood vessels in the medulla oblongata. Don t have other bleeding issues. (Need a 22 butterfly for blood draws and IV s). My genetist glossed over stroke risk. I am guessing it is significantly increased - if so, any idea how much?. ( I have limited info on biological family.) email:
posted on Sun, 7 Dec 2014
Twitter Sun, 12 Jul 2015 Answered on
Twitter Mon, 13 Jul 2015 Last reviewed on
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Pathologist and Microbiologist,  's  Response
Hello, The type of Ehlers Danlos syndrome that you were diagnosed with is a typeIII, that is the type that generally does not cause much problems in the quality of life provided joints are protected. The type of Ehlers Danlos that has a risk for blood vessel wall weakness leading to aneurysms and strokes is the Type IV and Type VI according to the current evidence base. Therefore you are not at increased risk for these conditions . Your risk for aneurysms or stroke is the same as for any individual . Risk factors for stroke include smoking, increased blood pressure called hypertension, abnormal blood lipids and blood sugar. So rest assured, your type of Ehlers Danlos does not put you at increased risk of blood vessel related problems and the overall quality of life and general life span are not affected. However, do remember to protect your joints and ligaments from injury. Should you require more information on your condition you may post your queries here .Best regards, DrGeetha
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Suggest Treatment For Ehlers-Danlos Hypermobility Type

Hello, The type of Ehlers Danlos syndrome that you were diagnosed with is a typeIII, that is the type that generally does not cause much problems in the quality of life provided joints are protected. The type of Ehlers Danlos that has a risk for blood vessel wall weakness leading to aneurysms and strokes is the Type IV and Type VI according to the current evidence base. Therefore you are not at increased risk for these conditions . Your risk for aneurysms or stroke is the same as for any individual . Risk factors for stroke include smoking, increased blood pressure called hypertension, abnormal blood lipids and blood sugar. So rest assured, your type of Ehlers Danlos does not put you at increased risk of blood vessel related problems and the overall quality of life and general life span are not affected. However, do remember to protect your joints and ligaments from injury. Should you require more information on your condition you may post your queries here .Best regards, DrGeetha