Suggest Treatment For Diffused Cerebellar Atrophy In A Child

Hi ,Doctor my son is 1.6 age and he has a problem diffused cerebellar atrophy which was revealed on 05.02.2014 at King Faisal Hospital here in RWANDA. He was born by surgery with 3.7kg and he now become very weak as he could not stand up .After CT -SCAN TEST ,i have presented the findings to the pediatric Doctor and he did nothing as he told me that he does not know the cause and the reason why he advice me to go online to see if i can find a specialist on this problem .Dear Doctor i have much sorrow because my daughter passed away by this disease at 4 years and the following son is this one i am treating as the same .I am wondering why ,as in my ancestors there were not people who had this problem .Thanks .Waiting to hear from you soon. my email is YYYY@YYYY