Suggest Treatment For Spina Bifida Scoliosis

My son has spina bifida scoliosis and a 50 degree loridosis. He also has a snrinx. He can not lay flat on his back it is several inches off table. The doctors do not be concerned and rarely address it. Is this something I should look at further? He also has chari malformation and AGCC. A shunt as well.(vp)