Thank You For Your Time. If I Have Been Diagnoised

Thank you for your time. If i have been diagnoised with pct porphyia as well as fech mutation medical bracelet called fletchners syndrome? Should i be tested for amyloidosis?? Many similiar symptoms skin tongue (orange these days) terrible bowel issues and vomiting ect. Low temp daily 95.5 but reaches high temp 100 every night.
Treatment so far changed diet glucose tabs, and four phlebotomies....creating anemia ect. Waiting on insurance coverage for hematologist reccomended hemetin with profalactic twice a week. Too bad the dr is in florida and i am mass. Main question is AMYLOIDOSIS?? other symptoms marked high white blood count (original mystery) and bone marrow high white blood as well. Honest sorry to waste time i didnt know it required payment.