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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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What Causes Orolingual Dystonia?

a year back my father start having problem with his down lip going right side while speaking , he goes to doctor and doctor pescribe to take some pills to boost energy ?? 8 -9 month down the road he start to have difficulties while speaking as tongues goes to right side while speaking and he couldn t chew his food properly he has been to lots of doctors lately and he didn t find that he getting any better , The consult doctor said that he belonged to OROLINGUAL DYSTONIA n he said that it would take time to cure. He took some medicines but nothing is improved but the doctor told us to continue to take the medicine. So i would like to know what exactly Orolingual dystonia is! and in his condition, we really don t know what to do. Please share me some suggestions. Thanks a lot!
posted on Thu, 14 May 2015
Twitter Sun, 2 Nov 2025 Answered on
Twitter Thu, 27 Nov 2025 Last reviewed on
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General & Family Physician 's  Response
Hi,

I can only imagine just how hard this must be for you to watch your dad struggle with speech and chewing. Allow me to simplify this for you in easier terms.

Orolingual dystonia means involuntary, repetitive, or sustained muscle contractions affecting the mouth, lips, tongue, or jaw. In your father’s case, the tongue and lower lip are getting pulled to one side while speaking or chewing — that is quite typical. These movements are not under his control and can make talking or eating very difficult.

Causes may vary: drug-induced, mainly by medications given for psychiatric or gastric problems interfering with dopamine, for example, long-term administration of some types of antipsychotics, anti-nausea, or mood-stabilizing drugs; sometimes it may also occur without a recognizable cause (idiopathic) or as part of neurological diseases with involvement of the basal ganglia that govern coordination of movement. It may rarely follow trauma or infection affecting the nervous system.

Since your father's problem has persisted for almost one year and is not improving with medicines, he really needs a detailed neurology review-ideally with a movement disorder specialist. They can identify whether it is medication-induced dystonia or primary dystonia and guide treatment properly. Some people get better with a change or cessation of the causative drug, while others get better relief with specific medications, botulinum toxin injections, or physiotherapy around the oral muscles.

I wouldn't recommend continuing with the same medicines, unless the neurologist has recommended so, since some such drugs that act as "energy boosters" could worsen the condition if they have any effects on dopamine balance.

So the next best step would be a full evaluation by a neurologist who handles movement disorders. Bring along all his previous prescriptions and reports for review. This condition is treatable, but improvement can be slow and gradual.

Take care. Hope I have answered your question. If you have any further query I will be happy to help. Wish you good health.

Regards,
Dr. Usaid Yousuf
General & Family Physician

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What Causes Orolingual Dystonia?

Hi, I can only imagine just how hard this must be for you to watch your dad struggle with speech and chewing. Allow me to simplify this for you in easier terms. Orolingual dystonia means involuntary, repetitive, or sustained muscle contractions affecting the mouth, lips, tongue, or jaw. In your father’s case, the tongue and lower lip are getting pulled to one side while speaking or chewing — that is quite typical. These movements are not under his control and can make talking or eating very difficult. Causes may vary: drug-induced, mainly by medications given for psychiatric or gastric problems interfering with dopamine, for example, long-term administration of some types of antipsychotics, anti-nausea, or mood-stabilizing drugs; sometimes it may also occur without a recognizable cause (idiopathic) or as part of neurological diseases with involvement of the basal ganglia that govern coordination of movement. It may rarely follow trauma or infection affecting the nervous system. Since your father s problem has persisted for almost one year and is not improving with medicines, he really needs a detailed neurology review-ideally with a movement disorder specialist. They can identify whether it is medication-induced dystonia or primary dystonia and guide treatment properly. Some people get better with a change or cessation of the causative drug, while others get better relief with specific medications, botulinum toxin injections, or physiotherapy around the oral muscles. I wouldn t recommend continuing with the same medicines, unless the neurologist has recommended so, since some such drugs that act as energy boosters could worsen the condition if they have any effects on dopamine balance. So the next best step would be a full evaluation by a neurologist who handles movement disorders. Bring along all his previous prescriptions and reports for review. This condition is treatable, but improvement can be slow and gradual. Take care. Hope I have answered your question. If you have any further query I will be happy to help. Wish you good health. Regards, Dr. Usaid Yousuf General & Family Physician