My 18 month old daughter had her ileocincal valve removed during emergency repair surgery immediately after birth due to complications from gastroschisis. She had an illeostomy for the first three months & her bowel was successfully reconnected. Since then, she suffers greatly from painful, loose, acidic, & frequent (10-12x daily) bowel movements & subsequent severe bouts of diaper rash. She is seemingly healthy in every other way. Is there any way to replace the valve? She suffers greatly & it breaks our heart every day to see our precious, joyful angel endure such pain while we are helpless. Any suggestions or advice would be very appreciated.
Sincerely,
Caroline