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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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Have Willium Camble Syndrome. Cystic Lungs And Fluid In All Lobes. Gained Weight. Can I Take Apple Cider Vinegar?

hi, I am 30 year old female. I have kind of asthma or allergy since i was 1 year old. I got cough and breathing problem in Oct - Nov every year. I was fine during rest 7 8 months. I got fever during my first pregnancy labor and and it continue for more than a month and ended up with severe chest pain . I was hospitalized for more than month and diagnose with pneumonia and fungal infection in my lungs. Dr told me that i am allergic to aspergillusis and mold. After more than a year of x-ray and lots of CT scan and brochoscopies. thay said I do n t have lung cancer , dark shadows are gone, I have willium camble syndrome means 4 5 branching of my lungs is missing by birth. i need to be more careful and need flu shot every year and pneumonia shot every ten year. Last time when I visit my Dr, he said I need to be on purple inhaler (Flo-vent) for rest of my life. He also mention that i have cystic lungs and fluid in all lobes. but he will not treat it now and leave it as it is. Now i am concerned about lung fluid and i also gaining weight very fast. I lose pregnancy weight of 20 kg in three months when i was sick and again got 15 kg in 9 months after. Dieting is not helpful as my immune system is very weak. no other weight loss med coz of my health condition. It is hard to do cardio for me. I feel breathless when using stairs at home. I just heard about apple cidar vinnegar to drink with water to lose weight is it helpful. More important is it safe to have it with regard to my lung disese? What should i need to do for fluid in my lungs?
posted on Fri, 9 Nov 2012
Twitter Fri, 9 Nov 2012 Answered on
Twitter Wed, 28 Nov 2012 Last reviewed on
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Allergist and Immunologist,  's  Response
Hello Aman,
You already know a lot about your condition and that definitely helps.
It is important that the sensitivities to aspergillus and moulds are defined properly.
Was IgE positive to aspergillus or mould mix, either by skin prick test (red weal and flare) or blood test?
Or was it specific IgG to aspergillus that was positive? Was a precipitin test done?
The precipitin test is to exclude a form of pneumonitis called hypersensitivity pneumonitis and occasionally can look like fluid in the lungs everytime an XRay of the chest is done. This hypersensitivity is driven by IgG antibodies and therefore a chest physician must be involved in your case to ensure this is not what it is.
Occasionally, a course of diuretics is given to see if the fluid disappears and can point to a cardiac problem. A 2D ECHO will be helpful to know the ejection fraction and ensure there is no LV or RV failure.
I hope that was useful
Thanks.
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Have Willium Camble Syndrome. Cystic Lungs And Fluid In All Lobes. Gained Weight. Can I Take Apple Cider Vinegar?

Hello Aman, You already know a lot about your condition and that definitely helps. It is important that the sensitivities to aspergillus and moulds are defined properly. Was IgE positive to aspergillus or mould mix, either by skin prick test (red weal and flare) or blood test? Or was it specific IgG to aspergillus that was positive? Was a precipitin test done? The precipitin test is to exclude a form of pneumonitis called hypersensitivity pneumonitis and occasionally can look like fluid in the lungs everytime an XRay of the chest is done. This hypersensitivity is driven by IgG antibodies and therefore a chest physician must be involved in your case to ensure this is not what it is. Occasionally, a course of diuretics is given to see if the fluid disappears and can point to a cardiac problem. A 2D ECHO will be helpful to know the ejection fraction and ensure there is no LV or RV failure. I hope that was useful Thanks.