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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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I Have Diagonsed With Takayasu Disease, Please Advise Me How To Be Cured Without Steroids ?

I have diagonsed with Takayasu Disease 6 months ago.. I have severe pain running down from my neck to my left arm... I have difficulties raising my arm up for 1 miniute... The pain is unbearable.. I cant carry or shampooing my hair , small things are difficult to do... I am very devastrated as i am only 29 and not married.. My future is a question mark in my life.. I was given presodine every 6 hours for two days when i was hospitalised.. But once im discharged i stopped my steriods of 20mg as the side affects are scarry.. Im already suffering, and i dont wish to suffer with other diseases cause by this drug.. Please advise me on how to be cured without steriods.. and what wat happens if it not treated or got worse.
posted on Thu, 11 Nov 2010
Twitter Thu, 11 Nov 2010 Answered on
Twitter Wed, 27 Apr 2011 Last reviewed on
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General & Family Physician,  's  Response
Welcome you to healthcaremagic community forum. Takayasu's disease is one of the inflammatory conditions affecting large arteries. Since this is a chronic condition, the treatment will be a chronic one. Apart from the steroids, cytotoxic drugs, immunomodulators are other class of medications that are used for treatments. Steroids form the first line of treatment as they are more effective treatment and its side effects compared to other class is less significant. Other drugs are used if steroids are ineffective. I would recommend you to continue with the steroid therapy as suggested by your doctors. Surgical options are the only remaining other option if you do not wish to use these medications, however, the feasibility has to be discussed with your doctor.. I understand what is going through both physically and emotionally, but do not lose hope. Things are not doomed. You will be able to lead life as normally as possible with regular treatment. Wishing you a bright future..
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flair99's  Response
Sorry to say that but you are one of the unfortunate person in this world. 1 to 3 person out of 1 crore people will have this disease.this disease affect the person in the younger age group especially female.

Please dont waste your time and consult the best immunologist and Rhemutologist as soon as possible.

Doctor has to start a treatment plan which will consit of obviously steriods and other concerned medicine.Which will stop the further damage from this disease.the already damage done cannot be corrected by the medicine.surgery may be the only option which can be done ,that also is suggested if the disease is controlled or cured.


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I Have Diagonsed With Takayasu Disease, Please Advise Me How To Be Cured Without Steroids ?

Welcome you to healthcaremagic community forum. Takayasu s disease is one of the inflammatory conditions affecting large arteries. Since this is a chronic condition, the treatment will be a chronic one. Apart from the steroids, cytotoxic drugs, immunomodulators are other class of medications that are used for treatments. Steroids form the first line of treatment as they are more effective treatment and its side effects compared to other class is less significant. Other drugs are used if steroids are ineffective. I would recommend you to continue with the steroid therapy as suggested by your doctors. Surgical options are the only remaining other option if you do not wish to use these medications, however, the feasibility has to be discussed with your doctor.. I understand what is going through both physically and emotionally, but do not lose hope. Things are not doomed. You will be able to lead life as normally as possible with regular treatment. Wishing you a bright future..