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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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On Iron Infusions For CTCL And Severe Anemia, Severe Rash On Chest, Back, Hips, Arms And Legs. Any Advice ?

Hi, I was told that I have CTCL, and severe anemia. I have been getting iron infusions weekly for 11 weeks, but no mention of treatment for the CTCL other than a "wait and watch" plan. I have a spot on my lung, and kidney as well as enlarged lymph nodes under both arms. I also have a severe rash on my chest, back, buttocks and hips, and scattered spots on my arms and legs. The rash is painful when new spots occur. The existing spots fade, then reoccur bigger than before. Are there certain tests that I should be requesting?? Should I seek a new doctor?? What would you do if I was your patient?? I have had CT scans, biopsies and labs that were "cloned" in a gene rearrangement study. Any advice would be greatly appreciated. I by no means want to be sick, or want to go through chemo treatments, but I have 2 children under the age of 4, and would like whatever it is that I have treated and gone before I am to sick to fight it off. Thank you in advance.
posted on Sun, 21 Jul 2013
Twitter Tue, 23 Jul 2013 Answered on
Twitter Tue, 23 Jul 2013 Last reviewed on
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Anesthesiologist,  's  Response
Hello,
Thanks for using Healthcaremagic. From your Query i understood that you are suffering from Cutaneous T cell lYmphoma with severe anemia. I think you have all the investigations like CBC, Skin Biopsy, PCR, Genetic study etc.. If the Diagnosis of CTCL is confirmed by these investigations, you must need treatment. But in the presence of severe anemia, your body cannot withstand Chemotherapeutic drugs and other immunomodulators. So it is necessary to correct your anemia first to start proper treatment for CTCL. Please wait till anemia is corrected by infusions. Once your Hb % levels are normal, then they may start proper treatment for CTCL.
Hope this helps.
Take care
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On Iron Infusions For CTCL And Severe Anemia, Severe Rash On Chest, Back, Hips, Arms And Legs. Any Advice ?

Hello, Thanks for using Healthcaremagic. From your Query i understood that you are suffering from Cutaneous T cell lYmphoma with severe anemia. I think you have all the investigations like CBC, Skin Biopsy, PCR, Genetic study etc.. If the Diagnosis of CTCL is confirmed by these investigations, you must need treatment. But in the presence of severe anemia, your body cannot withstand Chemotherapeutic drugs and other immunomodulators. So it is necessary to correct your anemia first to start proper treatment for CTCL. Please wait till anemia is corrected by infusions. Once your Hb % levels are normal, then they may start proper treatment for CTCL. Hope this helps. Take care