Suffer From Nephrotic Syndrome. On Myfortic, Neural And Deltacortil. Need Life Long Medication?
hey.. my name is ruttab im from pakistan.. my brother is suffering from nephrotic when he was 1 year old.. his treatment is going on , my parents consult so many doctors in karachi.. he is now 14 years old n doctors say that he will have to spend his whole life on medicines.. neural, myffortic, deltacortril all these medicines he used... treatment is on since 3 year.. please give ur opinion, suggestion to me .. my parents r facing this cronicle dieases since 14 year only at this hope that he will b perfectly fine one day.. please must rply.. thank you..
I understand your and your parents concerns about long-standing nature of the disease, without much clinical improvement despite multiple medications.
In this situation, it is advisable to see Pediatric Nephrologist (Pediatric Kidney Doctor). I don't know whether Dr Khemchand Moorani is a kidney specialist or not. I would suggest a kidney biopsy to find out the nature of the disease and adjusting treatment based on biopsy and blood reports.
It is quite possible that he is suffering from a severe form of Nephrotic Syndrome, wherein kidney function continue to deteriorate till the stage of kidney failure and needing kidney replacement therapy.
Please consult a good Pediatric Nephrologist in his care.
Sorry to say this - but he will need life long medication.
With proper medication, deterioration of renal function can be retarded
There is practically no chance of complete cure / a time may come, when he may need dialysis
Renal Transplant may an option at one stage
Discuss with Nephrologist...
Take care
Wishing speedy recovery
God bless
Good luck
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Suffer From Nephrotic Syndrome. On Myfortic, Neural And Deltacortil. Need Life Long Medication?
Hi, Thanks for writing to health care magic. I think he is a steroid dependent case of nephrotic syndrome. Those medications are required to prevent a relapse. You should consult a pediatric nephrologist and follow the treatment as advised. Continue to ask further queries as required. Hope this helps. Take care.