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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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Suggest Remedies For Degenerative Brain Disease In A Child

My little cousin has a very serious disease (in doctors opinion he has degenerative brain disease). He is just 4 and half years old and we are too much worry about him. We already have been consulted with some neuro physician doctors in Pakistan but they said that a big part of his brain has been damaged and it can’t be recover after seeing MRI report which I’ve been uploaded here: WWW.WWWW.WW Some doctors say it is happened because of his late cry during his birth (he cried approx. 8 to 10 mins late after delivery) and then after 20 days of his birth he got meningitis issue and he stayed in hospital for few months but after this he had been recovered very well, he talked well, he walked well even he was a very clever and sharp baby than others but since 5 months before he again got attack and doctors say now that he has degenerative brain disease. Doctors also have been taken few other tests like EEG, Anti Measels antibody CSF, Blood, Liver function etc etc and I’ve upload images of those tests here: 1.     http://xxxx.imageshack.us/xxxx/report.jpg 2.     http://xxxx.imageshack.us/xxxx/xreport.jpg 3.     http://xxxx.imageshack.us/xxxx/0000.jpg
4.     http://xxxxx.imageshack.us/xxxxx/0000.jpg
5.     http://xxxx.imageshack.us/xxxx/0000.jpg

So in doctors opinion there is no such medicine for degenerative brain disease but as he is getting fits (like when we just got a shock sometime and we scared) and he continuously getting fits in each 2,3 seconds. So neuro physician doctor has recommended some medicine for him to control his fits i.e. 1.     Apival Syrup. 2.     Frizium Tab. 3.     Lerace Syrup 4.     Debritone Syrup 5.     Zinkate Syrup In doctor’s opinion this medicine is as good as maximum to control his fits (I don’t know how to spell it but I have explained term fits above). 1.     So my question is that there is no proper treatment of degenerative brain disease in this latest time of technology? 2.     His situation is going bad to worse day by day with using these medicines which about doctors say this is as good as max so I just think sometime that may be doctors just couldn’t have figured out the actual issue of his disease because otherwise his situation should be little positive with using these medicines? 3.     So, after watching out his medical case history is there any place in the world who could deal this dangerous disease? He can’t speak now, can’t walk now, can’t eat now therefore he is taking all his feeds with NG tube. So, this is deeply request from the bottom of my heart, if there is any doctor in this world who could deal with this disease, please contact me as soon as possible. Regards. XXXX. Mob: 0000
Tue, 18 Feb 2020
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Pediatrician 's  Response
Hi,

Most of the neuro-degenerative disorders have very poor prognosis & treatments are limited to symptomatic treatment . for example the control of seizures, physiotherapy for spasticity. Certain neuro-degenerative disorders have targeted therapies however the diagnosis needs to be spot on for these.

Hope I have answered your query. Let me know if I can assist you further.

Regards,
Dr. Nathaniel John Pinto, Pediatrician
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Suggest Remedies For Degenerative Brain Disease In A Child

Hi, Most of the neuro-degenerative disorders have very poor prognosis & treatments are limited to symptomatic treatment . for example the control of seizures, physiotherapy for spasticity. Certain neuro-degenerative disorders have targeted therapies however the diagnosis needs to be spot on for these. Hope I have answered your query. Let me know if I can assist you further. Regards, Dr. Nathaniel John Pinto, Pediatrician