Suggest Treatment For Child Suffering From Nystagmus

Hi, may I answer your health queries right now ? Please type your query here...Hello I have a 17 month old baby boy,when he was born he kept looking at bright lights, I took him to the doctor, I was noticed his both eyes kept going from side to side and up and down. The doctor confirmed he had an nystagmus. In this past month James needs to tip his head right back to be able to focus on things, though he tips his head back that far that he actually falls over. I took him back to the doctor last week, he seemed worried about him, and mention maybe surgery to reduce the problem, he said to come back on the 18th march, Last Monday I took him to a private doctor, where he told me, he has never came across anything like what he has, he said James has an nystagmus going vertically and horizontally into his eyes and he thinks an operation would be to much off a risk. The doctor said he would do as much research between now and his next appointment date. I am just very confused as to what to do with James, what do you think we should do? Thanks