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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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Vitamin B12 Deficiency, Staggering Walk, Bleeding In Mouth, Exhausted, Numbness. Taking Injections Every Three Months And Nasal Spray. Solution?

I have vitamin B12 deficiency and have injections every 3 months. I have nerve sensation loss permanently in my hands and feet, I stagger when I walk. I have a burning sensation down my side and II cannot control my body temperature I oscillate from freezing so much I am shaking to feeling so hot I am burning and cannot breathe- I become very breathless in these bouts. I am now completely urine incontinent. I feel better after about a week after the injection. A further 2weeks later and all the symptoms are back again and after 6 weeks from the injection I am back to staggering, bleeding in my mouth, feeling absolutely exhausted, so tired I just feel I need to be on the floor and tearful which has never been me. I want nasal spray to keep up my levels between injections. My GP says the regime is once every 3 months- one size cannot fit all. The numbness is worsening it is now up my arms and my knees. No one is listening. I was normal last summer. I am now virtually disabled. I have found a nasal spray in the US but it is licenced only for those without nerve damage involvement.
Can I safely use this spray. I cannot go on any longer without some kind of help.
Tue, 11 Jun 2013
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General & Family Physician 's  Response
Hello,
A severe VIT B 12 deficiency is generally diagnosed very late.
The treatment regime in such cases is...
Injectable VIT B 12 daily for a week
Then once every week for a month
Then every month.
Along with Injectable VIT B12 ,you are advised to have good oral intake of meat,milk,cheese,eggs etc.
Must take good amount of FOLIC acid and can take green vegetables and fortified cereals for that.
Symptoms dont get corrected if brain or nerve cells are damaged permanently.
You must regularly estimate your serum VIT B 12 levels,every few months and see whether treatment is going in right direction.
Also get an alternate opinion from some neurologist regarding your treatment.
Thanks
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Vitamin B12 Deficiency, Staggering Walk, Bleeding In Mouth, Exhausted, Numbness. Taking Injections Every Three Months And Nasal Spray. Solution?

Hello, A severe VIT B 12 deficiency is generally diagnosed very late. The treatment regime in such cases is... Injectable VIT B 12 daily for a week Then once every week for a month Then every month. Along with Injectable VIT B12 ,you are advised to have good oral intake of meat,milk,cheese,eggs etc. Must take good amount of FOLIC acid and can take green vegetables and fortified cereals for that. Symptoms dont get corrected if brain or nerve cells are damaged permanently. You must regularly estimate your serum VIT B 12 levels,every few months and see whether treatment is going in right direction. Also get an alternate opinion from some neurologist regarding your treatment. Thanks