What Causes Stiff Neck, Shoulder And Increase ESR Levels In Hypermobility Patient?

I have severe hypermobolity. I have bulgin discs in lower back wear and tear c5/c6 disc. I am now experiencing stiff neck and shoulder/arms very weak. Seeing a physio every 3 weeks and he explained I have very weak muscles. My bloods have been done and all come back fine. Apart from my ESR which is now 98, this has been steadily increasing in the last 3 years. I feel unwell and weak all the time, and very down. In constant pain. Been checked for infections and all clear. Now on Morphine patches. Seeing Rheumatolgist again on Feb 7. I saw the Rheumatolgist Jan and he thinks there is an underlying condition as hypermobility does not usually cause as much as I am experiencing (weak muscles etc) and it should not cause ESR to raise so high either. I am worried. And the proffesionals seem some what baffled. And in the mean time my pain and mobility becomes worse. Can not stand up unaided anymore, have an electric wheelchair to enable me to get out and about.