Question: My husband, 83, has had dementia (primary progressive aphasia) for 13 years. After bout w/pheumonia almost six months ago, I was advised to keep him in bed. Although he hasn't developed pressure sores/skin problems, he quickly became much stiffer than before in spite of our efforts to do passive ROM exercises daily. We requested a physical therapist for consultation. She and his neurologist agreed that we if we could get him up, we should. Hospice would only allow the P/T one visit to train 2 of our 4 caregivers in proper technique. I was not permitted to hire a P/T privately (offered to do so). The P/T and neurologist recommended the muscle relaxant baclofen. He had a reaction after one dose (has had reactions to plavix, toprol, and other drugs. Now Hospice is suggesting a low dose of methadone. Hospice N/P has seen him and should realize that he is NOT in constant pain (only when moving his legs in certain ways). The hospice dr has NEVER seen him. The pain doesn't interfere w/sleeping and eating. He has been on a bi-Pap machine for over 10 years for 2 kinds of "severe" sleep apnea, and his neurologist told me that his breathing complications would probably be his cause of death. I'm angry that Hospice would even suggest methadone. I want to withdraw from Hospice immediately. Am I overreacting? If so what questions do I need to ask Hospice? Thanks.